We started Tegan’s Butterflies in Paradise in February 2016, following the closure of a council run support group for families of pre-school children with Down Syndrome.
The original ‘Charnwood Group’ had been running for over 20 years, initially set up by a Paediatrician in partnership with education and health colleagues. For the final few years it had been run by Derby City Council’s Early Intervention Team. However due to declining numbers and council cut backs, the group was set to be closed and a vital support to families lost.
As parents of children with special needs ourselves, who had benefited from the group, we decided to continue the group, opening it to all families who had pre-school children with special needs, rather than just Down Syndrome … And Tegan’s butterflies in Paradise was born.